Our RARE disease resource library is a comprehensive collection of information, resources, and support for individuals affected by RARE diseases.

Our growing library contains a variety of materials including articles, research studies, fact sheets, support group information, and more to help educate, empower, and connect individuals navigating the challenges of a RARE disease diagnosis.

We are adding on to our database every day, if you are unable to find a resource, please contact us and we will do our best to find what you need.