Rare Patient Impact Grant
“The RARE Patient Impact Grant program makes a tangible difference in the lives of rare disease patients and caregivers in the United States. As an exclusive funding opportunity for rare patient organizations that are a part of the Global Genes RARE Foundation Alliance, these grants provide a positive impact on patient communities in need
RARE Scholars Program
RARE Scholars, an annual scholarship for students living with rare disease, aims to empower patients with continued education by recognizing students who have demonstrated leadership and participation in school and community activities. The RARE Scholars program will distribute up to $20,000 each year, awarding $5,000 for undergraduate four-year or graduate studies or $2,500 for two-year or vocational-technical studies. Applicants must be high school seniors, graduates or current postsecondary or graduate level students diagnosed with mucopolysaccharidoses (MPS) phenylketonuria (PKU) or Batten disease and are not required to be previously or currently undergoing treatment with a BioMarin product. Applications for the 2019 fall semester must be submitted on or before March 28, 2019.